Patient support

Find out about the support systems in place for Zavesca patients.

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Patient stories

View different patients' experiences living with type 1 Gaucher disease and taking Zavesca therapy.

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Making the most of Zavesca therapy

Zavesca has been proven to deliver important benefits to people with type 1 Gaucher disease. Still, keep in mind that Zavesca may take some time to work in ways you can notice. Even though some people taking Zavesca may not feel better right away, they can experience benefits that their doctors can measure. Individual results may vary.

Giving it time

Remember, different people react to Zavesca in different ways. Have patience and stick with it; Zavesca may help keep your disease under control and make a positive difference in your life.

Talk to your doctor if you have any questions or concerns.

Introducing Zavesca Cares. Learn more about the program and how to enroll.
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Help yourself by making healthy choices.
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Simple Steps for making the most of Zavesca.
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Understanding Your Zavesca Therapy is an Important First Step.
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Talk to your doctor first before making any changes to your diet.

Read more about changing your diet

What is ZAVESCA?

ZAVESCA is a prescription medicine taken by mouth for adults with mild to moderate type 1 Gaucher disease. ZAVESCA is used only in people who cannot be treated with enzyme replacement therapy.

Important Safety Information for Zavesca:

In clinical studies, the most common adverse events due to Zavesca included weight loss, diarrhea, and trembling in the hand (tremor). Other common adverse reactions were excess gas (flatulence), abdominal pain, and headache. The most common serious adverse reaction was tingling or numbness in the hands or feet with or without pain (peripheral neuropathy). Patients should undergo neurological examination at the start of treatment and every 6 months thereafter; Zavesca should be reassessed in patients who develop symptoms of peripheral neuropathy. Zavesca may cause fetal harm if administered to a pregnant woman. Men should maintain reliable contraceptive methods and not plan to father a child while taking Zavesca and for 3 months after discontinuing treatment.

Please see full Prescribing Information.